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Screen shot of the alt text over an image: "Blue and white stick figure actively wheeling a wheelchair."

I've been getting ready for the launch of A Broom and A Spoon, a podcast for and by Pagans with chronic illnesses made by ED and I. Since we also plan to discuss issues relevant to Pagans with mental illnesses, disabilities, and sensory processing differences, it is important to us to make everything connected with the project as accessible as possible. It has been quite the project, and I wanted to share some resources and tips I've discovered so far so other Pagan resources can also be made more accessible.

Website testing: It turns out there's a lot more to an accessible website than alt text for images, though that is really important. This website was very enlightening to me about both of my websites: WAVE: web accessibility evaluation tool. Many of the defaults for both Squarespace and WordPress websites are not very accessible. For example, Squarespace's way of dealing with alt text means that when I use a screen reader app, all of the alt text is read twice. My WordPress pages are full of errors like "Missing form label", "Redundant title text", and "Redundant link", all of which are done by WordPress or the theme I chose and will have to be manually overridden (if they even can be at my skill level).

Keyboard accessibility: It is driving me nuts that I can't get focus indicators to work on either website when they should be on by default. WebAIM is full of tips and cautions for making websites more accessible.

Designing for everyone: I love these posters of how to design better for a variety of needs: "Dos and don'ts on designing for accessibility".

Closed captioning: YouTube auto-generated captions are on a scale from bad to terrible. Really, I tried to watch some of them on mute and I have no idea what the person is actually saying. Please, please, edit the captions.

Videos for the blind: On the subject of YouTube, if you are posting one, consider making a described video version for people with vision problems. There's an easy free tool at YouDescribe.org, though you have to send people to their website to see it. If you don't want to record your own, let me know - I love doing described videos.

Edited to add: Social media accessibility: I stumbled across this great tutorial on accessibility on the major social media platforms: Accessible Social Media.

I have a lot of work to do on my websites to get them to where I would like, accessibility-wise. I hope other Pagans will be inspired to check their own websites and online resources too, and pass on tips to each other. Let's make accessibility a core Pagan value!

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Shattered glass tumbler with the broken shards of glass lying alongside on a black background.
Shattered glass tumbler by freebie.photography is licensed under a Creative Commons Attribution 3.0 Unported License.

My spine and brain is a frayed electrical cord, short circuiting and sending confused messages to my body. I lose connection to parts of me; sometimes I look at my fingers and toes to make sure they are still there.

Broken connections to broken dishes: mixing bowls and glass measuring cups are the victims of my numb hands. I can no longer tell what's a normal fumble that could have happened to anyone and what's my confused nervous system. Every time I slosh wine, every time I drop my phone, every time I trip over nothing, I wonder.

Broken dishes to broken trust, as I don't know what to expect from my body anymore. Random surges of tingling, random muscle clenching, random weakness and tremors... my body is unpredictable and not in my control.

I have always believed in an embodied Paganism: a religion that doesn't deny the reality of being in possession of a body with needs and senses; a spirituality that acknowledges that we're animals and that we're natural beings; a faith that finds spirit and grace in the world instead of in the afterlife. But that was easier when my body was comfortable to inhabit. It was easier when I could trust my body.

This disease takes a lot from people. I won't let it take my Paganism, but some re-envisioning may be necessary to find perfect trust in my broken body.

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A woman sitting in a wheelchair smiling in front of a mountain vista. "Sedentarism is very much linked to consumerism, materialism, colonialism, and the destruction of the planet. If you're not moving, someone else is moving for you, either directly, or indirectly by making STUFF to make not moving easier on you. You were born into a sedentary culture, so 99.9 percent of your sedentary behaviours are flying under your radar. Start paying attention. What do you see?" - Katy Bowman, Movement Matters: Essays on Movement Science, Movement Ecology, and the Nature of Movement.

Every time I read it, my stomach clenches in the way that means that this is something important. I read the above quote on Boing Boing under the intriguing title "Your body has been outsourced". It pulls on my gut in many ways: as a fitness lover and a person interested in body positivity, as a person interested in protecting the environment, as a person who tries to think critically about capitalism and colonialism, and as a Pagan interested in embodied religion. I dug into Katy Bowman's blog with some trepidation, though, because I am now also a person with health conditions, one of which may prove to be profoundly life-altering.

At the end of 2016, I was a part-time fitness instructor going to the gym 4 or 5 days a week, who used a standing desk at work, and who commuted to and from my full-time day job and all over the city on my own two feet. At the end of 2017, I had given up my fitness class and my standing desk, I was working from home several days a week and commuting by bus when I had to go in, and waiting for my MRI results.

I think people should move, or not move, in ways they want to. Exercise is not a moral imperative; health isn't an obligation. And no matter how much we would like to pretend otherwise, health also isn't always in our control. Sometimes there isn't a choice to move or not move; your body chooses for you.

I curl up on myself, holding the parts of me that hurt, and know that I am privileged to get to sit for long periods every day with work, education, entertainment, and connection all delivered to me digitally, and sometimes food and other necessities ordered online and brought to my door. I am blessed that I can be sedentary; I try not to resent my body for needing so much stillness.

I feel the unfairness in my body.

I feel it in my numb and fumbling hands: I am outsourcing my personal labour when I choose to buy new socks rather than darn the ones I have.

I feel it in my aching shins: I am participating in environmental destruction when I choose to email my colleague instead of crossing the room to talk to her.

I feel it in the shocks that run down my arms: I am supporting the exploitation of people when I use one of my three portable phones instead of going to the phone in the kitchen.

I feel it in the brain fog and when I can't hold on to simple information: I am relying on ethically-challenged systems when I use apps on my phone to track my medications and keep track of appointments and meetings.

It's a kind of cognitive dissonance, I think. My gut tells me that it is right to do as much of my own labour as possible and my heart tells me that it's best to move, but my legs and arms and brain don't always cooperate. That might be my reality; it is the reality of many people around me, including some I love very much. I don't know how to resolve this push and pull when I am unwell, but when I am feeling well, I won't take it for granted.

Yeah, well, so mote it be, right?

Ain't no rest for the wicked until we close our eyes for good.
Cage The Elephant - "Ain't No Rest For The Wicked"

Similar to and overlapping with the issue of accessibility is the issue of Pagans dealing with chronic illnesses. This seems like a less explored topic. The Mighty, an amazing site created to empower and connect people facing health challenges and disabilities, has 4 articles when you search "pagan" and only one of those was an author describing themselves as Pagan. There was 1 article for "Wicca". I couldn't count the number of articles that come up when you search "Christian". Given how many Pagans have chronic health conditions, there's definitely room for more exploration of this topic. Here are some people who have started the conversation:

"Physical restrictions due to a chronic condition can make it difficult to feel as if you're connected with the Goddess (or Deity or general energy or nature etc). Conducting rituals indoors because cold weather makes your pain worse, you can feel cut off from the Earth and it's energies. You can feel cut off from other Pagans and the community at large because it's difficult to get out and get to meetings. And because the level of pain you're in is unpredictable, it often means you have to cancel plans at the last minute.

"This can be disheartening. You can end up feeling like you're not a proper Pagan. ...

"Illness isn't something that should steal your faith from you. There are things you can do. As in every other part of your living with a chronic illness, it can mean cutting back on what you do to save your energy."

- "How To Be a Practicing Pagan with a Chronic Illness"; guest contributor Nobby: Staff of Asclepius - Pagans With Disabilities

"Doing something may help you more than doing nothing. If you don't have a practice you can do on your worst days, it can be really easy to get out of the habit of checking in with your spiritual life (and feel even harder to pick up when you do feel better in the future.) Doing small things – especially things you set up in advance and use when you need to – can help a lot."

- "Chronic Illness and Pagan Practice"; Jenett - Seeking: first Pagan steps and tools

"No deity or Wiccan police have come to me and chastised me for not studying or working as much as Person B. If you need to take a few days away, do it! If you can only study 5-10 minutes a day- hey that's 5-10 minutes MORE than you knew before you did that, right? If you can only meditate a couple of minutes, well guess what! That's a couple of quality minutes you just spent to better your mind and body. If you only have time to study by listening to Wiccan audiobooks while you're driving to work or picking the kids up or fixing dinner- do it! That's time that you will spend learning."

- "Chronic Illness and Wicca"; Country Hippie Crossing

A close-up of two people holding handsMy partner sometimes tells a story of the early days of our relationship. I actually don't remember the conversation, per se, but it is part of the structure of our life together. As the story goes, I sat him down and offered him a simple agreement: we will both agree to say what we mean and we will both agree to believe what the other says. If you say you are OK, I will trust your word. We aren't perfect at this, but it has generally been a helpful guideline by which to live together: a goal of perfect trust.

On Facebook recently, I linked to a rant article about Pagan Standard Time. I was mostly interested in the cultural aspect, where Pagan culture has made flakiness, lateness, and lack of preparation and planning into values. It's as if we subconsciously believe that you can't be "magical" or spiritual and still be capable of reading a calendar. My experience with assorted community organizing certainly bears this out: there are the volunteers who don't show up for their shifts and never respond to emails about whether or not they are OK; there's the criticism of leaders who insist on event licenses and insurance with their associated costs; and there's a general acceptance of everything running late from the unapologetic leaders and the shrugging "Pagan Standard Time" response from participants.

After I posted the link, a fellow Silver Spiral member pointed out the ableism in the article. When you narrow the focus from the general culture of Paganism down to the actions of individuals, you can't tell the difference between flakiness and invisible disabilities (or other life challenges) that might stand in the way of someone being prepared and on time. There are those who would prefer to be thought of as flaky rather than share the private details of their physical or mental health or other life circumstances, and we should respect that.

In a perfect world, the Pagan community would have a simple agreement: everyone would do the best they can to be on time and to be prepared, and no one would question or complain about those who don't succeed. We would give up the mythology that our magic interferes with our ability to be practical. We would trust that everyone's doing their part, even if that part seems small. We would make room for those who need more support or more time because they'd no longer be lost in a sea of people who choose not to take their community commitments as seriously as their schooling or day jobs.

Given that I can't single-handedly change Pagan culture, I will commit to this: I am going to do the best I can to start my events on time out of respect for those who made the effort to be there promptly - especially those with challenges; especially those whose challenges are invisible or unknown. I am also going to hold space for those who aren't on time or prepared. When they arrive, they'll be welcomed and included. I'll try to work with the assumption that everyone is making their best effort and that they should not have to explain or justify themselves. I will try believing the intentions and words of others with the impossible goal of community-wide perfect trust.

Blue and white stick figure actively wheeling a wheelchairAs Paganism matures, we have to address a huge range of accessibility issues for our religion: physical accessibility for Pagans with mobility issues, assistance for Pagan parents, audiobooks for Pagans who are blind, sign language interpreters for deaf Pagans, inclusivity for LGBTQ Pagans, a welcoming atmosphere for Pagans of colour, accommodations for Pagans with allergies, and more. Luckily, we have some smart, helpful, welcoming Pagans talking about those issues already:

"In this case, the unpopular thing is the idea that we – Pagan leaders and ritualists – may need to change how we approach rituals in order to make our rituals more accessible and inclusive. We may even need to re-evaluate some of our dearly-held theological beliefs. If we want the dominant culture to change, to legalize gay marriage, support people with disabilities, eliminate racism... don't we have to do that work first ourselves, within our community?"

- "Ritual: Physical Accessibility, Transgender Inclusion, and more"; Shauna Aura Knight: Pagan Activist

"Given the huge variation between and within lineages in Gardnerian and Alexandrian Wicca, adding a bit more variation to the mix shouldn't be in the slightest bit controversial - but strangely, as soon as you mention including LGBT people, disabled people, and people of colour, it becomes controversial. I wonder why that is?"

- "But what do you actually do?"; Yvonne Aburrow, inclusive Wicca

"If there's any piece in a ritual that's gendered, they're usually for one of the two most common genders. Where do I fit if I'm involved in that ritual but the best descriptor for my gender mode is "the green of the deep woods in shaded places" (and yes, that is a gender mode I experienced very recently, and no, I don't have any better way to describe it). And that's just in ritual; what do I do in social spaces before and after? "Hi, my name is Dee and my pronouns are they and them," isn't necessarily the best icebreaker that doesn't also completely derail the purpose of the gathering (depending on the group, of course)."

- "Gender - What's the Big Idea?"; Dee Shull: The Liminal Waters

"And yet when these sorts of things occur, it gets kinda frustrating, and isolating, and lonely, and sad, and painful, and emotional... because when things like this come up I feel these complex issues do separate me. They kinda split me in half. I know I can go into the Deaf Community and they get it, and they can provide support... but they can't always provide the magick and the healing, and the spiritualness that gets me through days like this. But where can I find that same comparable understanding and support within the Pagan Community? I'm not saying it doesn't exist... but it does seem more challenging to locate it."

- "Mandela’s Fake Interpreter"; Ocean: Deaf Pagan Crossroads

"One of the walls I often crash against in the wider pagan community is the inaccessibility of events and rituals for children who have special needs, from autism spectrum disorders to physical mobility issues, that require accommodation. We are a community that prides itself on inclusivity, and yet I often see a lack of it towards children in general and specifically towards children who have behavioral or physical challenges. The biggest argument against it seems to be that something important will be lost if we change what we are doing to make it easier for children with different needs to attend. I disagree, and I think by making our [open, public] rituals too focused on creating a numinous experience for the adults present we are losing a more genuine feeling of community that should be present in religious worship by open groups.

"What frustrates me is that it doesn't have to be this way – while it does require compromise and reworking it is not impossible to accommodate families that need it. And I will never believe the Gods, ancestors or spirits are offended by the actions or needs of a child who is doing their best in the moment and only wants to be part of a spiritual celebration."

- "Irish-American Witchcraft: Pagan Events and Special Needs Children (or Adults)"; Morgan Daimler: The Agora

"There are also a lot of festivals, rituals and events, whether as small as a coven or large as a regional festival, that aren't very accommodating. And that's a problem.

"You see, we're getting old. As a movement, we are aging. Today Gardner would be over 120, and Alex Sanders would be in his 90's. The youngest of their initiates would be in their 40's to 60's now, and most would be much older.

"The Beatles wanted to know if you'd still love them when they turned 64. I wonder if our community will still be there for us when we're 72 or 86?"

- "Is Paganism Blind To The Disabled?"; Star Foster: Pantheon

"Some people in the Pagan community get it. They design gatherings with flexibility built in. They communicate clearly but inclusively — "We will be doing X" rather than "X kind of people should not apply." They are more interested in providing a positive experience and encouraging their fellow Pagans than in excluding people whose bodies don't meet their preconceived notions. They welcome questions and find ways to work around limits."

- "Welcome vs. Go Away"; Jane Raeburn: "Vulcan's Sister"

"There are also many people with disabilities whose voices are not included in this article. Some are quite isolated and have difficulty attending events at all, and rely almost entirely upon the internet to make contact with people of like mind. The Wild Hunt did reach out to a number of Pagans with disabilities about sharing their perspectives, but one thing that is all too common is that some disabilities — regardless of its other impacts — sap energy and make otherwise simple tasks much more difficult, such as sending an email or typing out a sentence or two in reaction. We would like to acknowledge these unheard voices within our community."

- "Pagans with disabilities face unseen challenges"; Terence P Ward: The Wild Hunt

A restroom sign with a white triangle instead of a man or woman stick figure
Photo by sarahmirk, published under a Creative Commons license.

Every year, I go to a big local literary festival. I typically buy tickets for six or more events over the course of a week and come home with a pile of new books. I've mentioned before that this particular festival includes a territory acknowledgement before each event. This is something that started a year or two ago, and it's really the most basic of acknowledgements; the moderator reminds people to turn off their cell phones, that the event takes place on unceded Coast Salish Territory, and to please Tweet after the event using the hashtag... It's better than nothing.

I had the same moderator at two different events. At one, she did the same type of acknowledgement as everyone else had been doing. At the other, she asked everyone to take a moment of thoughtful silence after doing the acknowledgement. One was an event with Joy Kogawa, a Canadian author and poet of Japanese descent, and the other was an event that included two First Nations authors - Katherena Vermette and Joan Crate - and was about books that include Indigenous characters.

This festival includes simultaneous events at several different theatres. At one theatre for an evening event, the bathrooms had been relabeled as "gender neutral". The next day, there for another event, I found the conventional signs were back. One event was for transgender author Ivan Coyote's "Tomboy's Survival Guide" and the other was for a panel of thriller and suspense authors.

We weren't more on unceded territory one of those day and less on the other, and that fact was not more worthy of thoughtful consideration because there were First Nations people on the stage. Though "Tomboy's" attracted more transgender and non-binary audience members than the average event, everyone needs a safe place to pee every day, not just when they are represented on the stage. In fact, the reverse is true: if someone at "Tomboy's" had to use a gendered washroom that was not an obvious match to their gender presentation, there probably would have been no fuss or issue; the same could not necessarily be said of the same person in the same washroom during the thriller author event.

Social justice isn't something to nod to when forced to by the visible presence of a minority group. We need to do the right things to make our communities safe and comfortable for more people. If we make our public events and rituals inclusive and welcoming of people who aren't there, maybe one day they will be.

We need to practice social justice over and over until it becomes good, conscious, purposeful habit - until we are inclusive as a default. Good habits take time and effort to develop. The "3 R's" approach looks good...

... every time we first pick up the broom to cleanse the space, we acknowledge that we are on unceded First Nations territory, and we take a moment to sit with that knowledge.

... every time we light the central candle on the altar, we agree that we consent to being a part of the ritual and speak of our right to withdraw that consent any time we want, and we enjoy the mutual respect and self-care that creates.

... every time we take down the Circle, we deliberately distribute the clean up chores among everyone, and we appreciate the benefits of cooperation and undermining gender roles.

... every time we hold a ritual that includes social justice components, we remember that we want to make the world more fair, more just, more safe, more comfortable.

A cat with a pen and a noteboook I don't know much about fantasy football, but it is my understanding that the game is to assemble the best team on paper that you can from all active players on all teams. That's how I have tended to create schedules for myself.

My fantasy schedule is dominated by "should": I should wash the kitchen floor every week, I should meditate, I should eat less sugar, I should practice parking more often, I should create a morning ritual, I should call my mother more often... in my head, I create elaborate schedules that include all the things I should do, but it is just a fantasy. "Should" isn't about intention or action; it's about guilt and (self-)criticism.

I've recently decided to try to give up the word "should". When I hear myself tell myself that I should do something, I stop and ask myself if I actually care about doing it. If the answer is "yes", then I change the sentence to one of real intention: "I will do that tonight". If the answer is "no", then I give myself permission to let go of the guilt and the fantasy.

I've been finding that a very big challenge, and one of the areas where I have particular trouble is related to spirituality. I have been having trouble letting go of the idea that one day I'll want to spend my mornings meditating, sipping herbal tea with a nutritious breakfast, and conducting simple but deeply meaningful rituals. The truth is, I want to spend my morning drinking espresso, playing Solitaire on my phone, and serving as a warm lap for my cat.

I been thinking about that gap between desire and action and why it exists. I have always wanted to be a spiritual person, but I never put plans into action, at least not for long. Then a friend of mine, who has been running Vancouver Pagan Pride Day for several years now, said something in one of the preparation meetings for the March 19th fundraiser event to the effect of "This is my spiritual work."

That rattled around in my head until I had one of those slap-your-forehead moments: for all my discussions about different ways to be Pagan and the centres of Paganism, I had never thought about what my own inclination towards Community-Centred Paganism actually meant for my personal practices. It should have been no wonder that meditating, praying, lighting candles, and making offerings didn't work for me; solitary ritual would never tick the right boxes for me. What does work for me is participating in group ritual, volunteering for the community, writing group rituals, and writing this blog. My spiritual work doesn't look like I expected it to, so I dismiss what I am actually doing - what is actually calling me and bringing me satisfaction - and try to make myself into what I picture religious looks like. And since that doesn't call me, it just leads to "should".

My spiritual practice doesn't look like kneeling in front of an altar praying. My spiritual practice looks like sitting in front of a laptop, it looks like long walks thinking about theology, it looks like my spiritual family sharing bread by candlelight after grounding, and it looks like editing a book and creating workshops. That's where my spirit wants to be, and it makes it easy to avoid fantasy schedules and just do things.

The Greek letter a When I was a kid, I had a strong preference for reading, crafting - solitary activities. I was a reluctant participant in birthday parties, organized clubs, and group activities. My mother used to accuse me of being "anti-social", but being a reader of books beyond my age group, I knew from quite young that that term carried the burden of misanthropy and hostility towards people that I simply didn't have. I didn't hate people or social society; I simply didn't care to participate. At about 8 years old, I told my Mom I was "asocial", but I think the distinction was lost on her.

From the Ancient Greek ἀ- (a-), meaning "without":

Asocial, apolitical, asexual, amoral, agnostic, apathetic... atheist. An "a" that negates without reacting against. An "a" that creates neutral ground between the pro- and the anti-. An "a" that takes no sides; that simply doesn't care to participate at all.

Considered in those terms, I am perhaps not so much agnostic - without interest in spiritual knowledge - as I am more atheistic - without interest in god(s).

I've just taken the compost out and I'm standing in my driveway, looking at the moon. I am captivated by its beauty, which is amplified by countless generations of myths and poems and enlivened by scientific knowledge. I connect to my ancestors who saw the same moon and to all the people that see the same moon. I am so small in the context of all the time behind and time ahead and space all around, and I am so large in being part of the web of life. I am the universe seeing itself and I am but a flicker in its great story. I feel wonder and awe and my feet, cold in my thin slippers. I am grateful for the moment. If what I send out is a prayer, it is to the pull of the moon and the beauty of the night and the convergence of everything that gave me that moment. If there's a god there, it is one that is larger than a personality and smaller than a power and more diffuse than a name.

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Screenshot of the title shot for "The Middle" TV show. "Jön Upsal's Garden" put out a challenging question:

"... anyone who identifies as a pagan atheist, or humanistic pagan, or religious humanism, or whatever the heck they call themselves. Why do you include the word "pagan" in your self-identification?"

The post was mostly directed at The Allergic Pagan, who responded quite eloquently here, and another powerful response has already been put out by Nature is Sacred, but I thought it was an interesting question to engage with as someone from the middle.

Despite my skepticism, slippery beliefs, and uncertain faith, I am deeply committed to my identity as a Pagan. To me, it brings together things I can't find together any where else:

That I get a shiver of awe when seeing a sky full of stars and when I learned in Geology 101 that we are all made of stardust.

That I can feel deeply reverent while learning about the oldest living organisms and while chanting with my community around a candlelit altar.

That I can find deep connection with Pagans who may be polytheists, animists, pantheists, atheists, or something else, because we can all share sacred space, and that I can debate and dissect the very basics of religion with those same people after because we share a Pagan tent that's very large and very diverse.

That we're a dynamic religion where experimentation is encouraged, but where we also have traditions and elders to guide us.

That I can change my spirituality to fit new scientific information and that I can create myths and beautiful rituals out of facts.

I love being a part of a religion - of a community - that includes both atheists and polytheists and that lets me be in the middle.

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